Thanks for the well wishes!! She is a ball of energy now and we were very very fortunate that she is doing so much better. She has Hirschsprung's disease and had 2/3 of her large intestine removed when she was just a week old. With the disease, some kids have just a few cm taken out, and others lose their entire digestive tract. We were lucky and she's in the middle, and doesn't have a stoma bag. Her complications will be lifelong but there's a potential that she leads a pretty normal life at this point actually. She'll never have a regular bowel movement, but that's overrated from what I hear
In the early years she was getting enterocolitis pretty frequently, a infection of the bowel due to blockages (Hirschprung kids have bowels that can't move the stool along). When she has it she vomits constantly and she has to go to the ER immediately. If untreated it can lead to things like bowel perforations and has a significant mortality risk.
I learned just how averse I am to seeing someone get an IV when they tried over, and over, and over to get her one while she was really sick a few times.
But like I said, overall we are very lucky, she's doing great.
In the early years she was getting enterocolitis pretty frequently, a infection of the bowel due to blockages (Hirschprung kids have bowels that can't move the stool along). When she has it she vomits constantly and she has to go to the ER immediately. If untreated it can lead to things like bowel perforations and has a significant mortality risk.
I learned just how averse I am to seeing someone get an IV when they tried over, and over, and over to get her one while she was really sick a few times.
But like I said, overall we are very lucky, she's doing great.
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